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Document Category: Older People


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Dementia 100: Summary Guidance

The fundamental concept of the Dementia 100: Pathway Assessment Tool is to provide a mechanism for capturing and understanding the characteristics and specific requirements that are considered key to the development and delivery of service and care needs for people living with dementia and their carers. The Dementia 100 extracts and combines pertinent information from multiple sources into a single, consolidated tool for self-assessment. Completed at Place level, it provides a holistic and integrated view of service provision. At system level it aids strategic planning and sharing best practice.

Community Development, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
community-development mental-health-and-wellbeing older-people physical-health-and-wellbeing uk service-themes demographics geographyguidance-document national-review
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Running a screening of ‘The World Turned Upside Down”

‘The World Turned Upside Down’ is a play that was staged in Exeter in January 2022. This film shows both the play itself and the process of creating it. We hope that many different types of people will be interested in ‘The World Turned Upside Down’. This guide is designed to help you set up and run your own screening in your local community. Inside are suggestions for how to set up and facilitate a screening event, but everyone’s set-up and audience will be unique. Pick and choose what will work best for you.

Community Cohesion, Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
community-cohesion everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing uk service-themes demographics geographyguidance-document
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DEEP Guide: Dementia words matter

The Dementia Engagement and Empowerment Project (DEEP) have produced guidelines for journalists, organisations and communications departments to inform why language about dementia matters. It allows people to use words and descriptions which was accurate, balanced and respectful. The language used to talk about dementia influences how people with dementia are views and also how they feel about themselves

Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
mental-health-and-wellbeing older-people physical-health-and-wellbeing uk service-themes demographics geographyguidance-document toolkit-and-resources
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UK DRI: Diversity and dementia

How is research reducing health disparities? The UK Dementia Research Institute published this report in 2022. It looks at the statistics of dementia research and considers how health inequalities may play a role in understanding the true impact of dementia. They explore how dementia research may help to understand how and why different groups are affected differently by the same diseases, in order to target nterventions where they are most needed to maximise their benefit. “We must reject longstanding biases in scientific research, and instead innovate in the name of inclusivity”

Everyone, Mental Health and Wellbeing, Older People, People From Minoritised Communities, Physical Health and Wellbeing, UK
everyone mental-health-and-wellbeing older-people people-from-minoritised-communities physical-health-and-wellbeing uk demographics service-themes geographyresearch-paper
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Dementia Dekh Bhaal

Supporting South Asian carers of relatives with dementia in Rochdale – an Evaluation Report
An evaluation of the Dementia Dekh Bhaal (meaning ‘to care for dementia’) project, set up by tide (together in dementia everyday). The project was commissioned to address the needs of South Asian carers by developing and delivering a training package for professionals, campaign to increase awareness and use the power of stories to change perceptions. The project used an Asset Based Community Development approach and used ‘Lived Experience’. It was seen as successful and was recommended to be embedded in other community engagement projects

Community Cohesion, Community Development, Equality and Diversity, Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
community-cohesion community-development equality-and-diversity everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing uk service-themes demographics geographyresearch-paper
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Crowded Isolation and Loneliness – full report

A Perspective from Carers of People living with Dementia
tide (together in dementia everyday) conducted some research looking at the experience of carers of people living with dementia, who are often surrounded with support from many services but feel isolated and crowded with responsibility. This full report explores 6 key themes identified, with additional insights and stories shared. Recommendations for national change are provided

Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing uk demographics service-themes geographyconsultation-document research-paper
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Crowded Isolation a Loneliness Executive Summary

A Perspective from Carers of People living with Dementia
Research undertaken in 2021 to look at the experiences of carers of people living with dementia, who are often ‘engaged’ with many support services, but feel isolated and crowded with responsibility.
An executive summary of the report

Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing uk demographics service-themes geographyconsultation-document research-paper
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Living Grief Booklet for Professionals

tide (together in dementia everyday) have created a booklet for anyone working with carers of people with dementia, to help them support those individuals with living grief

Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing uk demographics service-themes geographytoolkit-and-resources
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Making Shared Care a Reality

The experiences of family carers when the person they have looked after goes into a care home. Tide (Together In Dementia Everyday) sought feedback from carers once the person they cared for had moved into a care home. It was a lack of consistency across care homes and prompted tide to raise awareness of this disparity and make recommendations for future action.

Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
mental-health-and-wellbeing older-people physical-health-and-wellbeing uk service-themes demographics geographyguidance-document research-paper
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Guide to the Living with Dementia Toolkit

A guide for those living with dementia and their carers and family. The toolkit is arranged in 5 themes – stay safe and well, stay connected, keep a sense of purpose, stay active, stay positive. It was created based on research and co-production with a group of people with dementia and carers. Includes links to research and signposts to further information for resources to help people with dementia. An example of how documents can be made accessible, with explanations about QR codes etc

Community Cohesion, Equality and Diversity, Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, Recreation, UK
community-cohesion equality-and-diversity everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing recreation uk service-themes demographics geographytoolkit-and-resources
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Dementia and Hope

This document sets out the vision of a group of dementia organisations in the UK who have come together as One Dementia Voice. It outlines how these organisations are thinking differently about their support for those living with dementia, and how wider societal barriers can be overcome with the right support. It addresses frequently asked questions and provides suggestions on how to embed ‘Dementia and Hope’ into your organisation. There are also many personal stories and examples of how ‘reasonable adjustments’ can and should be made for people with dementia.

Community Cohesion, Community Spaces and Places, Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, Recreation, UK
community-cohesion community-spaces-and-places everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing recreation uk service-themes demographics geographyguidance-document research-paper toolkit-and-resources
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Libraries and dementia: connecting people with dementia

In 2022, Innovations in Dementia working with a number of libraries in the UK to explore their experiences of dementia and opportunities for further work and connection. This document outlines some key findings from that research, divided into 4 key sections: Key statistics about digital exclusion, ‘how to’ tips on bidding for and managing funded dementia projects, case study examples and ‘how to’ guides for supporting and encouraging people to access simple technology. Whilst aimed at libraries, findings apply to anyone considering dementia support and digital inclusion

Community Cohesion, Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
community-cohesion everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing uk service-themes demographics geographycase-study research-paper toolkit-and-resources
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IDEAL Policy Brief: Improving the experience of dementia and enhancing active life

IDEAL is the largest study of living well with dementia in Great Britain and began in 2014. The eveidence will enable the development of new policy, interventions and initiatives to transform the lives of people with dementia and their carers. The policy brief sets out key messages, key findings, provides information about IDEAL and signposts to resources and research papers

Community Cohesion, Everyone, Mental Health and Wellbeing, Older People, Physical Health and Wellbeing
community-cohesion everyone mental-health-and-wellbeing older-people physical-health-and-wellbeing service-themes demographicspolicy-brief
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Dementia: A cross-sector manifesto

This manifesto was created ahead of the 2024 General Election, calling on the government to make dementia a political priority. It highlights dementia as the UK’s biggest killer and a growing health and social care challenge, with costs projected to reach £90bn by 2040. Written by 5 organisations in collaboration (Dementia UK, Alzheimer’s Research UK, Alezheimer Scotland, UK Dementia Research Institutre & Alzheimer’s Society), the document outlines 5 priority areas for action – prevention, early diagnosis, post-diagnostic support, social care funding and investment in research. Scientific breakthroughs offer hope, but urgent policy and funding commitments are needed to transform care

Older People, UK
older-people uk demographics geographynational-review policy-brief
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The State of Health and Care of Older People in England 2025

A few months ago the incoming Government published a 10 Year Health Plan, which sets out the transformational change it believes is needed to put the NHS on an even keel and make it fit for the future. Age UK strongly supports its main thrust, the aim of shifting the emphasis in healthcare ‘from hospital to home’ through the development of a Neighbourhood Health Service. We were pleased and honoured to be able to contribute to the development of this part of the Plan. As the initiative is rolled out ….

Mental Health and Wellbeing, Older People, Physical Health and Wellbeing, UK
mental-health-and-wellbeing older-people physical-health-and-wellbeing uk service-themes demographics geographynational-review
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Power Threat Meaning Framework

The Power Threat Meaning Framework is an over-arching structure for identifying patterns in emotional distress, unusual experiences and troubling behaviour, as an alternative to psychiatric diagnosis and classification. The project team’s aim was to produce a foundational document which sets out the philosophical, theoretical and empirical basis for such a framework and describes how it can serve as a conceptual alternative to psychiatric classification in relation to emotional distress and troubled or troubling behaviour.

This is an overview. A full 400+ page report is available from the British Psychological Society.

Children and Young People, City, Coastal, Community Cohesion, Community Development, Community Spaces and Places, County-Wide, Education/Training, Equality and Diversity, Everyone, Families, Female, LGBTQ+, Lone Parents, Male, Mental Health and Wellbeing, Older People, People From Minoritised Communities, People with Mental Health Difficulties, People with Multiple Disabilities, People with Physical Disabilities, Refugees/Asylum Seekers/Immigrants, Rural, Support Service Activities, UK, Urban, Village
children-and-young-people city coastal community-cohesion community-development community-spaces-and-places county-wide education-training equality-and-diversity everyone families female lgbtq lone-parents male mental-health-and-wellbeing older-people people-from-minoritised-communities people-with-mental-health-difficulties people-with-multiple-disabilities people-with-physical-disabilities refugees-asylum-seekers-immigrants rural support-service-activities uk urban village demographics geography service-themesguidance-document research-paper toolkit-and-resources
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Ageing Well Report

This report draws on community consultation to tell us how our funding could support older people across Somerset

County-Wide, General Charitable Purposes, Mental Health and Wellbeing, Older People, Poverty and Disadvantage, Support Service Activities
county-wide general-charitable-purposes mental-health-and-wellbeing older-people poverty-and-disadvantage support-service-activities geography service-themes demographicsresearch-paper
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Somerset Activities and Sports Partnership – Move 2 Independance Case Study

SASP helps people find ways to move more that work for them to promote good health and happiness and are pleased to be working with hospitals across Somerset with this new service.

County-Wide, Older People, Physical Health and Wellbeing
county-wide older-people physical-health-and-wellbeing geography demographics service-themescase-study

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